Jamie's Heart Foundation was set up to help families like us deal with situations like we are in. Jamie had a congenital heart defect that was treated at Seattle Childrens. Her parents saw a need, and created this organization to fill that need. They help out with all of the little things that people often don't know they need it until they need it. For example, they are assisting us in paying for our hotel stay. How incredible is that?!?!
Another thing Jamie's Heart Foundation can do is provide tax deductible opportunities for anyone who wants it. All you have to do is designate any gift to us, Matt & Alissa Peppley. They will then in turn make sure that we get what you have donated. That's pretty cool.
Also, I suppose I should apologize for all of you who have already provided financial means to us and are now thinking "that nincompoop! why didn't he tell me before we gave them all that cash!?!?" Well, I am sorry. I have been a little preoccuppied lately...
Anyway - you can visit www.jamiesheart.org for more info.
Aaannd - in other news, we have completed our second puzzle. As soon as my wife can download a picture of it onto her computer, she will likely put it into this post. My mom and sister-in-law Heidi came up today and brought Isaac for another visit. He had a small meltdown at the place we went for lunch. But other than that, he's doing great and it is wonderful to spend some time with him.
Thanks again for your time, support, faith, and prayers. We wouldn't be where we are without you guys all going through this with us!
Toddler melt down? Sounds like everything is normal in that department! Thanks for the info on Jamiesheart...
ReplyDeleteAm praying for your sweet little Anna! My AnnaBELLE was born last year in July with an unbalanced AVSD with hypoplastic left heart and aorta... it's been quite a journey and learning experience. We spent almost a year in the hospital with her, ending in heart transplant in April.
ReplyDeleteI have a huge heart for other "heart" parents, so will be following little Anna's journey and praying my heart out for her and your whole family!
Fun: my *best* heart Momma friend from the hospital (we were at Vanderbilt Children's in Nashville) has her HLHS daughter named Anna Reese... We call them the Anna's!
My name is Brandi and I found your blog through the article written about your family (I have a google alert set up for HLHS). My daughter Madison was born May 2nd. Our original diagnosis was HLHS. After she was born, her diagnosis was changed slightly to double inlet single ventricle (we cannot tell which side), dextrocardia, pulmonary atresia and stenosis of the LPA. Today actually marks the 1 year anniversary of us learning about her special heart.
ReplyDeleteWe are now 4 weeks post Glenn and she is doing amazing! I remember where you are right now all too well. Hang in there... These heart babies are absolutely amazing. Your family will be in my prayers.
Sincerely,
Brandi Gandy
www.caringbridge.org/visit/gandyfamily
Hi Alissa and Matt ~ Just want you to know that prayers are coming your way from Boise. I completely understand when you say that if just one person can benefit from the situation it is worth it. I have had times in my life when through my grief I have sent up that very prayer. I pray that your family will be fully blessed and that God will give you peace that passes ALL understanding. I pray for a smooth induction of labor for you (I am a labor nurse - so I totally get that aspect things)! I enjoyed reviewing the songs you posted - some of our family's favorites. It sounds like you are fully surrounded by prayer - praise the Lord. Keep the faith! Friends in Christ - Erin
ReplyDeleteHi Alissa and Matt
ReplyDeleteI am not sure how I ended up on your blog, but I am glad I did. God is Faithful and the ultimate healer!!! I am praying for your family. I have friends that have been blessed with a miracle daughter. Here is the website for the foundation they started in her honor
http://jaydendelucafoundation.org/
Their journey with Jayden was incredible for the short time she was here. May you be blessed and encouraged. I am a mother and also a nurse so I know the anxiety and anticipation you might be going through right now. I will continue to lift your family up in prayer over the next days and hopefully months and years if God grants Anna the opportunity to live with us on earth.
Know that He is listening and loves you and your family.
Teresa (Boise ID)
Hi Alissa and Matt:
ReplyDeleteI was also induced at the UW and my daughter Raygen was taken to Childrens on 3/23/11. Raygen also has HLHS and she is due to have her second surgery the Glenn on 12/12/11. You and your family our in my prayers. I have been where you are and know the fear. I also started a blog to share our journey.
praying4raygen@blogspot.com
Erin
Praying from Sunnyside, WA. Saw your story on the new and have added you to my list. :) God bless you as you wait.
ReplyDeleteWhen I saw the title "Matt's poor brain," I was looking forward to all the jokes that I might be able to make. But I decided against it. :) I do believe that your brain has endured much more than I can even imagine these past few months. You're a strong man.
ReplyDeletePraying for peace.
I don't know yall and you don't know us but I came across your story by people who know yall on fb! We live in WA...I would love to write a blog post tomorrow to bring in even more prayers for Anna from those who read our blog! I know how it has blessed us immensly knowing that so many people are praying for us and I'm sure you get the same feelings.
ReplyDeleteWe pray Jesus' hand over you and your sweet baby girl as she makes her entrance tomorrow!
Lots of love and blessings!
Katieandbenupdates.blogspot.com
Hello from Finland! It´s snowing in here :)
ReplyDeleteI´m a mother of 5 beautiful children. First four of our children came with infertility treatments. We were told that we will never be able to have children without help. But what happened to us! It took 11 years :)
We also heard that we were going to have miracle baby, Vilja. We had to go threw similar story than yours. I was 32 weeks preagnant when we heard that she has HLHS and will have those 3 surgeries. It was a rollercoaster! First miracle and then this horrible fear of losing her. I really know how you feel.
We also prayed and our loved ones prayed for Vilja. I started blog and Viljas fans were supporting us threw difficult days. Vilja has been true miracle. We had really rough beginning and she lived 3.5 months in the hospital and had 2 open heart surgeries during that time. In second surgery miracle happened and she now lives with four chambers in her heart. She has brought people together and near to God.
I really hope strenght to your family and Anna. I will pray for You. Annas live is so meaningful!
All the best,
Noora